Oh, and I also wanted to tell you about one of my conversations I had with a co-worker yesterday. I was so touched about this so now I'm sharing.
So, she had been working with caring and stuff for a very long time. And one time she was given the mission to teach two boys how to drive a paramobile or whatever you call it. Those wheelchairs with motors...
The thing with these two brothers, as they were, was that they had a decease that made then self-destructive. And then I mean SELF-DESTRUCTIVE, as in harming themselves so much that they would die. They were compleately normal otherwise, and it wasn't that they wanted to harm themselves, they just "had to".
So basically she told me that they were always properly tied up, both hands and feet, they could only move their wrists.
So they woulnd't know that this was an illness if they wouldn't have gone to the hospital and an American doctor happened to be there for a visit. It's so rare that hardly no one knows about it. And obviously there's no cure.
The first boy died at 14, when someone didn't tie him up properly at night. He managed to crawl down in bed so that a strap around his neck strangled him to death.
But imgaine being tied up because every moment of your life you are trying to kill yourself for no reason. For example, the brother who lived. Once he could drive the paramobile, he was in the park with my co-worker, and on the fence there was these spikes pointing inwards. He was driving against it so that it almost went through his throat, and if she wouldn't have been there, that would have ended in a different way. But eventually he died too, quite "old" at 28 years old. Apparently with this decease your bowels stops working after a while. And he knew all the time that this was gonna happen, and nothing could stop it.
Well, I just had to tell you, because I was really touched by the story.
Monday, 18 July 2011
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